Project Logo

The Language of Endometriosis

The language of pain is the story of invisibility.
It holds lived experience in every word.

About the Project

The Language of Endometriosis brings together linguistics, health communication, and digital tools to better understand and express invisible, complex pain.

Led by Dr Stella Bullo, this work spans peer-reviewed research, public writing, a custom dataset, and a metaphor-tagging web app to support patients and clinicians.

Peer-Reviewed Publications

Articles for the Public

Pain Descriptions Dataset

Coming soon: a visual gallery and downloadable dataset of real pain metaphors used by people with endometriosis, organized by theme and function.

Explain My Pain App

A tool that tags metaphorical pain expressions with experiential, emotional, and clinical insight — helping patients communicate better and clinicians understand more clearly.

Go to live app